![]() Care within this model is delivered according to the principles of person-centred care (PCC) as developed by Ekman et al. Therefore, the Centre of Expertise for Cancer Survivorship in the Netherlands developed the innovative Personalized Cancer Survivorship Care model with three important purposes: (1) to earlier detect and (2) treat late effects or (3) to preserve survivor’s health. The nature and incidence of late effects underscore the need for high-quality long-term follow-up care for cancer survivors. This is supported by Jones et al., who found that in adult survivors of childhood-onset Hodgkin lymphoma, exercise can lower their risk of cardiovascular events in a dose-dependent manner. These concerns stress the need to adopt or to continue a healthy lifestyle for this population. The manifestation of these health conditions in cancer survivors can be negatively influenced by the presence of unfavourable lifestyle risk factors such as overweight, smoking behaviours and/or a low physical activity level. Furthermore, it is now well established from a variety of studies that also health-related quality of life (HRQOL) of survivors can be severely compromised by the development of these and other late effects resulting from their past treatment. Moreover, survivors treated with cranial irradiation are at an increased risk of developing endocrine disorders related to obesity. Another category of common late effects involves cardiovascular diseases caused by anthracyclines and/or radiotherapy over the chest. Cancer-related fatigue (CRF), one of the most common treatment-related late effects, is known to seriously hamper survivors’ daily life activities such as attending school or work. Late effects of cancer treatment can have a negative impact on multiple dimensions of health, including physical and psychosocial health. ![]() These late effects, which may appear even years or decades after treatment, can be serious, leading to chronic morbidity and premature mortality. However, a disadvantage of successful treatment is that, due to chemotherapy and/or radiotherapy, cancer survivors are predisposed to an elevated lifelong risk of late adverse health effects. As a result, the number of cancer survivors is rapidly increasing. In the last decades, worldwide survival rates for patients with cancer have improved. ![]() If the interventions prove to be feasible and potential effective, a randomized controlled trial will be conducted to test the (cost)-effectiveness. This is the first study to evaluate the feasibility and potential effectiveness of eHealth nurse-led interventions elaborating on person-centred care, using cognitive behavioural therapy and/or motivational interviewing techniques as an innovative and promising approach for providing CAYA cancer survivorship care. Secondary outcome measures include changes in level of fatigue, self-efficacy, self-management and lifestyle. Health-related quality of life, as primary outcome of the potential effectiveness evaluation, will be assessed at three different time points: prior to the intervention immediately following the intervention and 6 months post-intervention. We will assess feasibility in terms of demand, adherence, acceptability, practicality and integration/implementation. Eligible survivors are survivors of childhood, adolescent and young adult-onset cancer who are referred to one of the interventions, in complete remission of cancer, 16–44 years old at enrolment, completed treatment at least 5 years ago and have access to a device with Internet options. The REVIVER study involves a mixed methods design, including (1) interviews till data saturation with cancer survivors who completed the interventions as well as with all involved medical professionals, (2) reviews of nurses reports and (3) a single-group, pre-post evaluation among cancer survivors. With the REVIVER study, we aim to evaluate the interventions’ feasibility and gain insights into the potential effectiveness. Elaborating on person-centred care principles with content based on cognitive behavioural therapy modules and/or motivational interviewing techniques, these interventions aim to empower and coach survivors to improve (1) symptoms of cancer-related fatigue, (2) self-efficacy and self-management or (3) lifestyle. We developed three different screen-to-screen nurse-led eHealth interventions for survivors of childhood, adolescent and young adult-onset cancer, collectively called the REVIVER interventions. Nevertheless, this care needs to be sustainable and cost-effective as well. Therefore, high-quality cancer survivorship care to earlier detect and treat late effects or to preserve survivor’s health is essential. Successful cancer treatment can lead to cancer survivors being predisposed to an increased lifelong risk of adverse late health effects.
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. ArchivesCategories |